Launching today
Health Data Avatar
Privacy-first cross-border health data management ecosystem
136 followers
Privacy-first cross-border health data management ecosystem
136 followers
Take control over your health data across providers and countries. HDA parses, translates, summarises, and structures all your health records from 25+ formats + soon wearables and apps, with focus on medical records and logs. Chat to your complete health picture, spot gaps & trends; identify sensitive info and selectively redact it, safely plug into LLMs, share what you choose via fine-grained access controls. Essential for migrants, health tourists, longevity enthusiasts and chronic health
Hi everyone! I'm Maria, founder of Health Data Avatar.
HDA was born out of very personal frustrations.
-As someone who moved countries 7 times — each time I had to start my health story from zero.
-As a patient advocate across 10 years and 4 countries, supporting just one patient meant manually reviewing hundreds of pages across portals, emails, PDFs, photos, and scraps of paper — only to realise how much of what truly happened was still missing. There was no single place to hold the full picture. No way to make it actionable. No way to share it safely across providers, languages, or borders.
HDA exists to fix this. A tool built for patients and carers — not hunting your data, but built to capture and securely store it, structure it, and make it truly actionable across providers, formats, languages, and borders. Not an extension of EHRs designed for clinicians. Something built for us, as it's the only way to truly solve the problem of health data fragmentation and finally access the whole picture for better prevention, treatment and diagnosing. Genius precision and prevention tools running on a shitty data can never unlock their full potential.
Only patients have continuous, cross-context insight into their own health — the motivation to keep it accurate and complete, and the context that no doctor can maintain for every patient.
HDA had an early prototype in 2019 — more of a personal hack, really. After years of research and finalising my clinical degrees, I met @hex_miller_bakewell and we transitioned to building HDA full-time, supported by an incredible group of patient advocates, clinicians, and engineers.
We've been bootstrapping for over 1.5 years, in private beta since May. It's a constant work in progress. We're exhausted, very excited — and we take every message, question, and concern seriously and with gratitude.
Hi everyone, and thanks @maria_sergeeva1 for bringing me along on something as amazing and ambitious as HDA. I've never worked on a project where people have been this continuously excited for us to build our vision and make it a reality.
I'm the CTO and principal engineer at HDA, and I'll be diving into any technical discussions I see to provide answers there.
I joined the project after a decade of chronic health conditions that were exacerbated by doctors failing to see my whole medical picture, and now I want to be part of the solution, helping people access, understand, and communicate their health data. Please try out the various demos, or leap right into creating your own account and using HDA today, your engagement and feedback is really appreciated.
Really useful product! Have you looked into how this could be used in maternity services, i.e. when a patient attends an unfamiliar hospital for an unscheduled or emergency appointment (for example reduced fetal movements)?
@mimi42 absolutely - core to HDA is the ability to access your documents whenever you wish, and to give you the power to share them. You can find documents and share them in seconds, and the clinician can then access those documents you selected just as quickly. The doctor doesn't need an account, or to download anything, so there's no restriction on the kinds of care (or urgency) you're seeking.
@mimi42 , thank you for your support, and what a specific, important use case to raise!
We started with a few particular focuses. Maternity is actually one of the areas we think about a lot, though we came at it from a different angle: mothers as carers who find it incredibly hard to delegate care, simply because they are the only guardians of data and knowledge that can't be easily transferred.
We're constantly talking to users and listening to the challenges people want tackled — so this is exactly the kind of input that shapes where we go next. Would love to hear more about the friction points you see. You can reply here, drop me a line at maria@healthdataavatar.com (I'm happy to set up a call as well), or join our community chat where, depending on the subtopic, people discuss healthcare navigation, feature ideas, and what to prioritise next.
https://chat.whatsapp.com/FmgOmasmyjC4oHwEAZKhzt
Kuulto
I'd love to dive into that! How does your system handle these languages under the hood? Does it translate everything into English first to process the data, or does it process German, French, and Turkish natively to keep the cultural and linguistic nuances intact?
@selcuk_sarikoz We're excited for you to try it!
When you add a document to HDA's the first thing it will do is construct a direct transcript. It keeps this transcript in the original language, and will use this transcript to construct answers using the chat, and for the multilingual search.
HDA also constructs short titles and summaries in whatever language you choose, helping you identify and find the right document no matter what language it was written in. The original is always there as the source of truth, while the translations are there as a helpful addition.
This looks like a really valuable product - a couple of quick questions; does it just hold all my medical docs or does it make them searchable too?
And is there any scope for translating languages in app? For example, if I’m travelling and can’t speak the language very well?
@charlotte_fletcher thank you! It holds your medical records so you can access them from anywhere, and also to allow for document sharing. You control the output language for the titles and summaries (and you can have per-language translations for each file), and the chatbot will help translate anything else on the fly.
Thank you for suggesting full-document translation, that's a very interesting idea for a feature!
This looks great! Useful, and also clearly based on a strong ethical foundation.
I'm interested in your longer-term plans for it - do you have a wish-list of features for future releases, or other broader plans for it in the future?
@james_poston1 Thank you! We have more detail about our vision on our website, and right now our most-requested features are to support parents jointly managing the data of their child. Being this early we're going to be keeping our ears open to what our users actually use and need.
Are you.adding more languages in the future?
@archie_miller_bakewell when it comes to handling your data we're language-agnostic by design. Our UI is currently limited to English, but we are working to expand this.
Congratulations on the launch! A really important and impactful problem to be working to solve, and a great use of these new technologies.
How has the private beta been going, what do users love the most?
@benblume Thank you! The beta users loved the PII redaction - being able to highlight sensitive data, and then output a Markdown file suitable to then pass to GenAI tools like Claude for further analysis. This was really helpful feedback, as I had initially feared it would be too niche.